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In need of a little guidance

Good morning everyone (at least here).

I'm new to all of this, and I've being reading a lot about (thank you for creating all content 💛😉, but I need a little help to know exactly about new symptoms.

I'm having symptoms for years now, but only changing doctor and after a phew tests they told me that is IBD. I'm waiting new tests results and a new colonoscopy, but since the new lockdown nothing is happening.

The thing is...I have all common symptoms, and some weird ones. Like bleeding nose that I learned here about being a thing... But things are getting worse.

I feel like something is wrong inside my bowel, like is possible to feel the inflammation. And I only feel relief from pain going to toilet. But since I have constipation, I feel sooo sick with so much backpain that I have to stay in bed and walking is painful.

But I'm not feeling better after toilet anymore. My stools are getting totally yellow and (sorry for this) with a rotten smell.

My skin is so dry and oily at same time, and my all body and scalp are very itchy, don't know if is related. Normally I feel hungry all the times, but now even food smell makes me sick. Is difficult to eat. I never had a flare like this one. I'm even getting restless legs (need to move it all the time).

I'm getting low fever every night, which for my body, is a clearly sign of inflammation somewhere. I feel weak, more than ever, and dizzy. But bloods came ok for anemia.

My doctor told me to wait the tests results to see what we can do. But I'm afraid that these new symptoms could be things getting really worse. So I don't know if is normal to feel this bad, or I need to do something fast, like hospital or ask for help to my gp.

(Sorry for the long post)
I'm really scared, bit I've being told that is always like this.

So I rly appreciate any help to understand a little about what is going on.

Lot's of hugs, and stay safe all 💛

  1. ,

    My heart goes out to you. I am so sorry you are going through this. IBD can be scary and it's great you are being proactive and asking questions so that ultimately you can feel better.

    Firstly, if you feel like your symptoms are worsening I would suggest going to the ER. It's always better to be safe than sorry and you can get the necessary testing and imaging to make sure that there is nothing serious going on.

    I had a similar experience with my stool changing color and giving off a putrid smell. In my experience, it turned out to be SIBO. I would ask your doctor to be tested for this. GI doctors are starting to do this test, I went to a Naturopathic Medical Doctor who tested me and gave me supplements to kill off the bad bacteria. I soon felt better and the putrid smell and weird coloration of my stool left. Along with the pain and fevers.

    Of course, I am not a doctor and am not diagnosing you in any way. You may not have SIBO, but this could be something to bring up to your doctor.

    Overall, if things keep worsening, I would just go to the ER.

    I'm so sorry you are going through this. I hope you are feel better soon. Deep breaths. I'm rooting for you.

    Gentle hugs,
    Elizabeth (team member)

    1. Thank you so much Elizabeth!

      It feels great to be welcomed and understood.

      I will talk to my doctor about this possibility.
      Today, I ended up calling them, asking for help. They sent me more tests. According to the doctor, my last sample came with high levels of calprotectin, but not enough for emergency care at the hospital. She thinks that if the new exam appears higher, I'll get priority. Until then, medicines for pain and symptoms.

      But if it continues like this, I will follow your advice to go to the hospital.

      Thank you again. I've being learning a lot here and lots of things makes sense now.

      Sending hugs to everyone <3

      1. ,

        I'm glad you spoke with your medical team and that you will be doing more tests. Keep us posted with how things go. I hope you start to feel better soon. We are rooting for you.

        Elizabeth (team member)

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