I have Ulcerative Proctitis and have been off of Mesalamine (Oral & Suppository) for about a year now due to moving, insurance problems, no doctors available in this small town, etc. Insurance in this town won't cover Mesalamine. It's been a nightmare. I finally went to ER last night after flaring for the past 2 months, unable to eat more than protein shakes and sometimes feeling well enough to get in a solid meal, in pain, bleeding, mucus, etc.
The doctors here are complete idiots! I explained what I have, and my Dr says...what is Proctitis? Then says there are no gastroenterologists at their hospital, and has to make phone calls to ask what kind of meds to give someone with Ulcerative Proctitis. Super frustrating. Anyways, he ended up prescribing me Toradol. Has any doctors done that for any of you? I didn't think that was a medication for UC. I actually thought it wasn't supposed to be taken. Also, I don't have diarrhea like most people...I get constipated....and each time I really need to make a bowel movement, my muscles keep it from coming out so I just strain for ages and bleed a ton. Do any of you experience this? What do you do for it? Also, what medications do you take that have successful kept you in remission?