Back to all discussions

Meds? Plus inability to....

I have Ulcerative Proctitis and have been off of Mesalamine (Oral & Suppository) for about a year now due to moving, insurance problems, no doctors available in this small town, etc. Insurance in this town won't cover Mesalamine. It's been a nightmare. I finally went to ER last night after flaring for the past 2 months, unable to eat more than protein shakes and sometimes feeling well enough to get in a solid meal, in pain, bleeding, mucus, etc.

The doctors here are complete idiots! I explained what I have, and my Dr says...what is Proctitis? Then says there are no gastroenterologists at their hospital, and has to make phone calls to ask what kind of meds to give someone with Ulcerative Proctitis. Super frustrating. Anyways, he ended up prescribing me Toradol. Has any doctors done that for any of you? I didn't think that was a medication for UC. I actually thought it wasn't supposed to be taken. Also, I don't have diarrhea like most people...I get constipated....and each time I really need to make a bowel movement, my muscles keep it from coming out so I just strain for ages and bleed a ton. Do any of you experience this? What do you do for it? Also, what medications do you take that have successful kept you in remission?

  1. Hi there . We're sorry to hear that you've been having these complications for the past year, and haven't been able to receive the proper care you deserve. I can hear the frustration in your words, I mean to go to a hospital that doesn't know what or how to help treat UC- ugh! Toradol is not often used to help patients with IBD. I want to let you know that you're definitely not alone in experiencing constipation, it can be so painful and debilitating. Our team member wrote an article discussing this symptom and I thought you might find it helpful: https://inflammatoryboweldisease.net/living/uc-constipation/ There are a variety of medications that can be used to help relieve people of their UC symptoms, and each person is so different in what helps them. I hope that others are able to chime in with personal experiences, and in the mean time here is some general info regarding treatments: https://inflammatoryboweldisease.net/treatment/ I also thought that this article that shares some patient assistance programs would also be useful for you: https://inflammatoryboweldisease.net/living/patient-assistance/ Please never hesitate to reach out to us again, and know that we are thinking of you. Sending gentle hugs your way. -Ashley (IBD Team Member)

    or create an account to reply.