Newly on Rinvoq
Hi All,
I have started Rinvoq at 45mg and been on it for 2 weeks for my treatment of UC. I have been on Prednisone and have been weaning that medication down. Some of my main challenges were the common issues like very frequent bathroom trips, blood in stool, fatigue, joint pain etc, which have all gotten better. I think some of this is the Rinvoq, but also the prednisone. Here is my question, after about 8 days on the Rinvoq, I am starting to feel very jittery and shaky and am very sick to my stomach. This has been going on for 4 days. My Dr prescribed some medicine for the nausea, but have yet to try it. I am curious if any of you have had the same issue with these side effects and if they subsided after a while. Right now I don't feel like doing anything and it is very unsettling, because I am liking the progress of the Rinvoq, but these side effects are a real challenge. If anyone can share it would mean a lot to me.
Thanks,
Hi
sorry to hear the symptoms you are experiencing. It sounds like you have already reached out to your doctor about what you are going through, which is a great first step. Hopefully others will weigh in with any experiences they have had with Rinvoq. In the meantime, I included a link to general information about Rinvoq, just in case something may be helpful - https://inflammatoryboweldisease.net/treatment/medications/rinvoq. Wishing you some relief. Kindly, Jessica, IBD Team Member 
So sorry you are going through this. I actually just started 45mg of Rinvoq. I had to stop because it was giving me fevers and I wasn't feeling well on it. I am now back on my previous medication although my doctor is now wanting me to try Rinvoq again but at a lower dose. It could definitely be the Rinvoq that is making you feel this way. It's so hard though because you are also on Prednisone and Prednisone has caused those symptoms for me. What does your doctor suggest? -Elizabeth (team member)
Hi, I just saw your post. I have been on 45 mg Rinvoq for about six weeks and have had no problems. There was a miscommunication with my G.I. doctor and I was supposed to be on prednisone at the same time, but didn't realize it, so I started (actually restarted) prednisone about two weeks ago. (Also on four mesalamine pills each day.) Rinvoq has been the only non-prednisone medication that has improved my symptoms at all. ( The side-effects for me on Sulfasalazine were almost worse than the colitis symptoms!) I am quite hopeful for the Rinvoq. (Other than the horrendous costs.) I hope you have seen improvement since your post and that you soon find something, Rinvoq or otherwise, that helps!
