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no symptoms but bad colonoscopy?

What does it mean if I have no symptoms but my colonoscopy shows inflammation/ulcers? Are inflammation/ulcers inherently bad (besides increased risk of colon cancer) if I don't have symptoms?
(If it's relevant at all, my CRP level is always low, even when I have a bad flare with symptoms).

  1. Hi .

    I'm sorry your colonoscopy has shown these things. Are you on medication for IBD? Perhaps the medication is keeping symptoms at bay? And in general, I think just across the board inflammation and ulcers are never a good thing. If you aren't having symptoms that's great but I would try and heal the ulcers and inflammation regardless. Ask your doctor about diets that can promote healing and supplements perhaps? Hugs, Elizabeth (team member)

    1. I don't know what it means, but I have a pretty good idea about what is going to happen because I too am asymptomatic. It's a blessing and a curse. It is a "blessing" we dont have the symptoms others have. We walk around all day oblivious to our disease. It's a "curse" because the IBD medical community is hand-servant to the pharmaceutical industry and we don't fit the mold.

      First, thing they are likely to do is tell you you need to reduce the inflammation asap. They will tell you need to be on either a traditional medical (pharmaceutical) regime or one of the biologics. If they go traditional they will probably start you out on Mesalamine. If they go biologics you will likely end up on Humeria, Remicade, Entyvio or Stelara. They will want to monitor you which means they will likely want you to have colonoscopies every year or two regardless of which option you choose, and no matter which option you choose (traditional or biologic) there will be less than a 50% anything will work. Like me you don't have any symptoms and all the options have side effects. Without a third party payer, you are looking at roughly $25000 a year. The threat will be if you don't act soon, you will be at a much higher risk of colon cancer. How high? About 2% after 10 years, 8% after 20 years. I am 75, and I dont care to live until 90. For me it's about "quality" of life from here to the finish line. They seem to be more interested in the "quantity" of life. So after 9 years, three national medical centers, eight IBD "specialists", two fails and a trip to the ER from Mesalamine, I quit screwing around with the IBD community and went the functional medicine route.



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