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Struggling on oral steroids

Hi everyone!
I’m still on the oral steroids being reported down slowly, I’m now on 20mg a day and have to do that for 7 days then I go down 5mg each time after 7 days, so I’m getting there but just wanted some moral support as I’ve really struggled these last number of weeks on them, and although they initially brought down the inflammation quickly, I’ve had a fair amount of side effects, including insomnia, anxiety, headaches, mood swings, bloating and I really feel like it’s tried to wreck my healthy diet too. Sorry just venting I guess ❤️

  1. I definitely can offer some moral support! I know how challenging it is to be on steroids. you point only have two weeks to go! So, that's the good part! Stay focused on that aspect. You're almost through it. How's your gut doing? I know the symptoms you're experiencing are tough to deal with, but if your gut issues improve, then that's key. Are you doing anything to distract yourself from the headaches, anxiety, mood swings, etc.? In other words, are you finding ways to treat yourself? Soak in a bubble bath, listen to soothing music, meditate, read books that interest you, do yoga, etc. I just started using an app called "In Sight Timer." It's a meditation app, and I absolutely LOVE it! It offers guided meditation by mindfulness experts and also provides soothing music and ambient sounds to calm the mind. Maybe it could help you sleep?? Check it out on your phone if you get the chance. Whenever I'm prescribed oral steroids, I've just learned that's the time I "treat" myself in the smallest of ways. I ask loved ones to "please be understanding," and then I just choose to do activities that are most relaxing to me personally. Above all, please be KIND to yourself right now. You're doing just fine. Keep reminding yourself of this. Besides, after this round of treatment, you will feel so much better. So in the meantime, just be gentle with yourself because you are so worth it. And by all means, vent as much as you need to. We're here for you. Thinking of you and sending air HUGS your way!! Please stay in touch! --Traci, UC-IBD Team Member

    1. You’re so loving and kind thank you so much for your support it really does mean so much to me. I will definitely check out that app you suggested! I don’t get that much time to relax because I have too young children but you’re right, a bubble bath, meditation and yoga are all things I thoroughly enjoy when I get the chance. Thank you again for being so supportive ❤️

      1. Oh, goodness! Two small children can be a handful, I'm sure. But whenever nap time rolls around, definitely find small ways to "treat" yourself. Maybe it's taking a nap along with the kids. Just choose what works for you and into your busy Mom schedule. Know that it will get better and you are doing just FINE. HUGS! --Traci, UC-IBD Team Member

    2. ❤️❤️❤️❤️

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