Hi everyone
I’m new to this forum. I’m having a low moment and thought I would reach out to other people who suffer to see if anyone has had any similar symptoms.
I am 29 years old, British Indian and fairly fit and active. I weigh around 60kg, 5ft2 inches.
In the last 5 years or so I’ve suffered from IBS but my symptoms don’t seem to fit just with IBS. I’ve been to the doctors many times to discuss my symptoms which I summarise as follows:
- For around 10 years I have had piles; mostly manageable with a couple of very painful incidents that I’ve seen a doctor for. This includes bleeding.
- Fatigue immediately after a bowel movement which lasts for hours afterwards; sleepy, difficult to concentrate, feeling very thirsty, just want to lie down and sleep sort of feeling
- Pain below my gut area that lingers for hours
- Pain in my hands in particular my fingers, in my feet mainly toes, knees and legs – only really AFTER a bowel movement, which lasts for hours (and generally all over but these are the main areas)
- Pain in lower back after a bowel movement
- Bleeding after a bowel movement – when I wipe, sometimes in the toilet water (I believe this is to do with the piles, but I feel all this issues could be connected somehow)
- Feeling nauseous, but never usually sick after a bowel movement
- A weird feeling after a bowel movement like I need to empty my bowels again (but don’t usually need to)
- Bowel movements at least twice a day. Between 2-4 times a day. Sometimes within a short space of each other. This isn’t diarrhea. I don’t strain to poo, but it is painful due to the piles more recently (since I was on coronavirus lockdown abroad and on a longhaul flight back!)
- Bubbling sort of feeling in my bowels
- I feel quite bloated and can extend my belly and look like I’m pregnant
- I have lots of flatulence – and a very understanding boyfriend!! Sometimes smelly, other times not smelly but loud and long (quite impressive sometimes)
I don’t have a symptom of weight loss at all which I know is quite common for IBD, I have the opposite really! I can lose weight when I am trying to and I’ve previously lost weight a few years ago to around 54kg but that was intentional.
I’ve had stool samples and blood tests at the doctors many times, always comes back fine with no inflammatory markers. I’ve tried to push to be seen by a specialist but as my markers come back fine I’ve not been referred. Its frustrating as I feel all these things but on paper I’m fine. I know camera procedures such as a colonoscopy are quite invasive and a locum doctor asked me once why I would even want one; but I feel I need this to see what’s actually going on inside my body. It’s getting me really down and effecting me at work. I've cried at the doctors on occasions but I just feel this is always dismissed and advised for lifestyle changes. I was referred to a nutritionist but that didn't go further than one session and I didn't hear back after.
Any comments would be appreciated. It could be severe IBS but if it is an IBD then I want to explore further to try and get the help I need to manage it. I know IBD suffers can suffer very badly so I feel if it is an IBD it’s more on the mild side compared to some (although doesn’t feel mild at times!!). The reason I feel it may be an IBD is because of the joint pain mainly in my hands and feet
I look forward to hearing from you!