caret icon Back to all discussions

Maybe colitis maybe something else

I need some help as I feel like I'm dying every month I have a flare and end up hospitalised. I've not been diagnosed with colitis yet but keep being told by my doctors it sounds like colitis.
Every couple of weeks or so I have a flare up as my doctor calls it, I have the sudden urge to go toilet, severe stomach pain, bloody diarrhea, vomiting, rapid heart beat, cold sweats and then I pass out. Its been happening for 6 months now and I've had a sigmoidscopy but it came back clear but everytime I end up in hospital they keep asking me if its ulcerative colitis, can anybody help shed some light on my situation, I've been gluten free for 5 months but it hasn't helped my symptoms like the hospital said it would. Could it be something else? Thanks in advance

  1. Thank you for sharing @amyturtle94. I am so sorry to hear of your monthly flares, and would suggest getting a second opinion from another GI. Have you ever had a colonoscopy or endoscopy? You deserve answers and I would pursue getting tests done until a definitive answer is reached. You don't deserve to suffer like this. Please keep us updated!
    --Julie (Team Member)

    1. Thank you for your reply, my doctor is absolutely amazing and put me through for a sigmoidscopy straight away but that only looks at part of the bowel, I'm waiting on biopsies to come back and then I have another appointment with the doctor and maybe get a step closer to a diagnosis. It's just really frustrating and constantly on my mind and I think I will feel better when I get answers

  2. you definitely need more tests! You can't live like that! Here's some info on the diagnostics that should help you get answers:

    I was personally diagnosed via colonoscopy.

    ~ Sahara (Team member)

    1. Thank you we've kind of hit a brick wall, my blood keeps showing inflammation everytime I'm admitted but they are not sure why, I've had a ct scan to check for crohns but came back clear and because I had a sigmoidoscopy the doctors have said they're stumped

      1. so they still haven't done a colonoscopy?
        ~ Sahara (Team member)

    or create an account to reply.