My Experience Being Gluten-Free With Crohn's DiseaseToday I thought I would talk about diet and my experience specifically of going gluten-free with Crohn's disease. There are lots of people who have gone gluten-free but can it...reactionscomments
When Remission Still Doesn't Feel Quite RightI would love it if remission meant I felt back to my normal self. The reality is that losing my colon has meant that my normal would always be a...reactionscomments
What Does a Crohn's Flare-Up Feel Like?Living with Crohn's disease inevitably involves flares. These are times when inflammation increases and symptoms worsen. It is uncomfortable, painful, and draining. To better understand Crohn’s flares, we recently asked...reactions2comments
Creamy Organic Nut Milk Frozen PopsiclesSince I don't eat most dairy anymore, I have been missing the deliciousness of creamy ice cream. I decided to make my own frozen popsicles after seeing an ad for...reactions4comments
When IV Insertions Go WrongLet me state the obvious: getting an IV is not fun. I have had probably hundreds of IVs inserted into my body since being diagnosed with Crohn's in 2009 and...reactionscomments
The Ugly FistulaSome things in life can’t be explained. The hole that took up my stomach is one of them. I always thought I had a great-looking stomach. I was thin, had...reactionscomments
The Joys of the Stool TestOne slightly vexing aspect of IBD is the stool test. For the uninitiated, this involves defecating in a pan before scooping out your excrement in little lab vials. I remember one...reactions2comments
The Stigma of UC: Breaking the SilenceI have a secret... No one can outwardly see my struggle. From all appearances, I look normal. More importantly, I look healthy. But I know differently. I'm not like everyone...reactions29comments
The Gut-Brain Axis and IBDI've talked on here before about how IBD can impact your mental health and why we need to do more to support patients with it. But new research has emerged...reactionscomments
My Blood Clot, Thanks to Ulcerative ColitisIn 2021, I started to flare worse than any flare I’d had previous to this. My body was not responding to my mesalamine at all and a strong course of...reactions15comments
Gastroparesis and IBD – An Unlucky ComboSince getting my PICC line and coming off total parenteral nutrition (TPN) in June, my body has been declining rapidly. I’ve chosen to try and keep things private, but it’s...reactions1comment
Dealing With Incontinence and IBDAccidents. Incontinence. Call it what you will. To be in your 20s and experiencing fecal incontinence is soul-destroying. I’m not saying it’s any less soul-destroying later or earlier in life...reactions4comments
Over 3 Decades of Crohn’s Pain… and Finally Pain-FreeOver 30 years ago, if you told me that one day my Crohn's and I would be finally pain-free, I would have probably thought it a dream. Well, I guess...reactions3comments
Stuffed Portobello MushroomsI absolutely love steak. However, I do not like to eat steak (or red meat in general) too often, so I have found a great alternative in portobello mushrooms. Having...reactions3comments
Can Biologics Change Your Periods?Today I wanted to share a personal post about my experience with a changed menstrual cycle since I started Humira (also called adalimumab). After asking in Facebook groups and doing...reactions9comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of...reactionscomments
The Bill You Didn't Ask ForAs someone who grew up in a working-class home, I’ve always been highly conscious of money and spending. As a graduate student, my attention to money has continued to be...reactionscomments
Gut Massage for Intestinal PainIt’s holiday vacation time. I’m sitting in a restaurant enjoying an ocean view and finishing a scrumptious seafood meal with my husband when the pain hits. The low rumble, gurgle...reactions5comments
There's No Shame in Taking MedsAbout 4 years ago, I stopped taking my medications. I had been on mesalamine for my ulcerative colitis and had been in remission for about a year. I was in...reactionscomments
Sweet Potato and Bone Broth SoupI feel as if I'm living off soup at the moment. It's great when I've got a cold (which I always seem to have right now!) or my gut isn't...reactionscomments
