So I wanted to write here after I found another very informative post a while back about colonoscopy coming back clean when searching for IBD. I want to tell everyone a little about whats going on and see what you that have been diagnosis thing/feel about my situation.
For the past 5 years I have gradually got worse (so since mid 20s) with diarrhea and horrible pains that come and go. A few years ago I ended up in the emergency room a couple times and the ER doctors said it was Gastritis. It happens every 6 months or so, and in between the ER visits is about 1-2 weeks of painful stool passings, and sometimes I cant even leave my house because I need to be around the toilet. First the doctors did the tests for IBD, my Calprotectin came back over 300 (when I wasn’t even having a “flare” up feeling because they took so long to get me in), along with Vitamin Deficiencies and my symptoms of pains, etc. So they sent me in for a Colonoscopy, which revealed no IBD traits in lower Intestine, but they found 4 massive hemorrhoids, which they had to do surgery on. I was OK for about a few weeks, then past winter ended up in the emergency room again, and then again a few weeks ago. They did an Ultrasound a few days ago and found a massive stone in my gallbladder. I meet with the doctor this week. The thing is, the colonoscopy was negative for Chrons. But 3 of 4 other tests have shown some things towards this, such as high inflammation in my stool. Now I have stones and have to have surgery on my Gallbladder. The doctor keeps hinting at IBD, and the ultrasound doctor yesterday said “I thnk its a couple things going on” when I told him “Finally, I am relieved to know its just Gallbladder!”, then he continued in a concerning tone “Have you had a colonoscopy?” and I told them yes, it was negative for IBD stuff, and he goes “Hmm. Well we need to look at something else but there is too much air in the Ultrasound to see what we need to see. So first we need to take care of the gallbladder problem now.”
So what in the heck is going on! My sister has IBS, and I told my doctor “I want to get with a dietician, maybe its just IBS” but he said he doesn’t thing it is and thinks its inflammatory due to the tests and symptoms.
Does any of this sound familiar to you that have been diagnosed? I am just frustrated because its been album 5 years since these episodes started and now they keep finding different stuff wrong, and now I have to have another surgery! Any help or advice would be greatly appreciated, because they keep ‘hiding’ this other diagnosis until further testing, and now, after another surgery.