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Hi @bethprideford, I’ve never heard of this! I know you posted this a little while ago, how are you feeling now? Hoping you’ve found some answers/relief. Warmly, Pam (team member)
Colin Harris is a 30-something writer from Ohio, currently living in the Nashville, Tennessee area with his wife Kara, and their cat Sadie. He was given the worst birthday present ever in 2008 when he was […]
Julie Marie Palumbo commented on the post, Fatigue: One of the Worst Parts of Crohn’s Disease 14 hours, 16 minutes ago
Thank you so much, Crystal! I appreciate your kind words and would love to do a follow up article about more tips of dealing with fatigue in the corporate setting.
–Julie (Team Member)
Julie Marie Palumbo commented on the post, Fatigue: One of the Worst Parts of Crohn’s Disease 14 hours, 17 minutes ago
I am glad I am not alone on that one! And yes, sometimes I really had to decide which was worse, not napping or napping and then trying to wake up which was often difficult. I’m glad we are both out of those times 🙂
–Julie (Team Member)
I am sorry you are still experiencing symptoms, Connie. I would recommend asking your doctor how long it should take for it to kick in, and consider getting a second opinion, as there may be an underlying condition that is not being addressed.
Always push for answers when you are not feeling well–you do not have to continue to suffer for this…
Julie Marie Palumbo commented on the post, Social Outings, Restaurants, Crohn’s & Supportive Friends 14 hours, 33 minutes ago
These are great tips, Amanda. I am a huge advocate of choosing the place to go to eat, or as you said, a few options, that I know are safe.
When I first met my husband, I was 3 weeks post-colectomy surgery so I HAD to choose where to go and he loved my assertiveness. Of course, it took a few weeks for me to say why I chose the places to eat,…
That is an interesting question! For me, I tend to get really bad lower back pain before and during a flare (from all the pressure I suppose) I have also been seeing the chiropractor much more lately and he gave me a list of stretches to do at home every day to help with my lower and mid back.
Amanda Osowski commented on the post, Social Outings, Restaurants, Crohn’s & Supportive Friends 23 hours, 8 minutes ago
Thanks Crystal!! I do agree that often, people have great intentions but don’t know when they might be upsetting us or saying things that make us more conscious of our IBD or limitations.
Warmly, Amanda (team member)
Amanda Osowski commented on the post, Social Outings, Restaurants, Crohn’s & Supportive Friends 23 hours, 9 minutes ago
Thank you for sharing! Fish and I have an on again, off again relationship, so I didn’t note it in the article. I know that every IBD patient has different safe foods so I’m really glad you shared yours!
Amanda (team member)
Thank you so much for sharing this, Jenna! I am actually getting a scheduled c-section in a few weeks for our first child and had the same reasoning for it as you do–possibility of tearing and creating/worsening fistula, as well as at least having some control over the situation 🙂
thedancingcrohnie commented on the post, Fatigue: One of the Worst Parts of Crohn’s Disease 1 day, 19 hours ago
Amen and amen. Fatigue is so so real.
When I worked my full-time design job, I would do that same as you! I would grab a quick smoothie for lunch and go to an area I found near my office that had a delicious couch that was super secluded and I would nap! I would just zonk out. And the worst is that it is so hard to get yourself up after…
thedancingcrohnie commented on the post, Social Outings, Restaurants, Crohn’s & Supportive Friends 1 day, 19 hours ago
Great tips! Thanks for sharing.
A tip I have that works for me is ordering fish. If it isn’t battered or fried, fish is always a great option for me to order. I never feel sick after and it’s easy to digest.
Elizabeth (team member)
thedancingcrohnie commented on the post, Will Those With Chronic Illness Ever Be Understood? 1 day, 19 hours ago
To answer your question: I feel like honesty is the best policy.
I find myself leaving out a lot of details whenever I am asked about my situation and how I’m feeling. I sort of give a broad sweeping statement.
Oh my…. I’m angry for you that you had to deal with all of that. It’s a shame that you weren’t given all the facts up front and I’m just appalled at the anesthetist’s comment to you, especially at only 19 years old! It’s for reasons like this that I love this online community where people can read stories from others who have actually gone…
I am so sorry you had to go through all of that! I can’t imagine and the fact that you weren’t fully informed would drive me mad. I agree ten-fold: tell me straight up vs. sugar coat things.
I hope you are doing well these days and finding relief from symptoms. Rooting for you.
Elizabeth (team member)
crystal.harper commented on the post, Fatigue: One of the Worst Parts of Crohn’s Disease 1 day, 19 hours ago
Thanks for sharing this side of Crohn’s, Julie! That’s great that you were able to run home in emergencies and take a quick nap. I agree that it seems like everyone just talks about how tired they are and I’m guilty of doing the same, but there certainly is a difference between being tired and full on fatigue. Neither is fun, but only one comes…
crystal.harper commented on the post, Social Outings, Restaurants, Crohn’s & Supportive Friends 1 day, 20 hours ago
What great advice! It sounds like you’ve found an amazing tribe of incredibly supportive people. Thank you for sharing your take on ways that others can be supportive as well. I believe that most people usually do have good intentions, but not everyone knows what’s helpful or may even feel awkward asking! Best, Crystal