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Hello! I was recently diagnosed with UC and currently on prednisone and Lialda. I’m about to start the AIP diet and new supplements. Can anyone suggest a good multi vitamin that’s AIP approved? Thank you!
For UC sufferers, I can’t stress enough how important exercise and a decreased stress level can be on your body. When stress increases, so does the possibility of a flare. During times of stress, a healthy lifestyle is crucial to keeping you out of the hospital and on the right path.
I still work with my doctors, but I choose not to manage my symptoms with medication. I still have regular bloodwork completed, which is extremely helpful to maintain a healthy life.
I’ve been where you’re at with UC. When I was on Remicade, I had the worst flare-ups of my life. I remember being curled up in a ball on the bathroom floor. And, I never want to be in that predicament ever again.
If you read all my posts from the beginning, collectively, they tell the story. My goal is to help other UC sufferers see an alternative to medication. I took Remicade for 7 years. Great for my AS, but terrible for my UC and general health and well-being. Think about that!
Eat the food, not the sauces. This is probably the most difficult part of eating healthy even for me. I have to keep reminding myself to taste the food and leave the sauces off. For UC sufferers, it’s about what you combine together at each meal that has the most positive impact.
Hi @jjudjr, thanks so much for sharing all of your tips and personal experiences! If you’d like, I’d encourage you to share your story in our stories section : https://inflammatoryboweldisease.net/stories/ or check out our forums to connect with others : https://inflammatoryboweldisease.net/forums/ 🙂 Warmly, Pam (team member)
I’m so glad to hear you’ve found a daily regimen that works for you! Thank you for sharing 🙂 – Pam (team member)
I should also mention I’ve been on Humira for 7 months.
Hello, I’m new to the forum. I was diagnosed with small bowel Crohns about a year ago. Still trying to understand when to be concerned and what to do about certain symptoms. For example, my gut rumbles loudly sometimes. I mean across the room loud. When I’m in meetings at work, people ask me if I missed breakfast or lunch, but that’s not it at…
I am grateful that my fistula is not as bad as some. There are too many women out there who are having trouble finding relief and healing.
I am thankfully not currently on any medications as I’m in remission.
I’m so sorry that you too have dealt with recurrent c-diff. It’s truly more exhausting than I could’ve imagined, and you’re so right – it definitely affects my mental health as well.
Hoping you stay infection free!
Amanda (team member)
Dear Fellow Ninja, you are very brave talking about such matters. We can all learn from one another . I did not know that could happen. I am just over 6 challenging years into my J pouch . If you don’t mind me asking, what medication do you take?
God bless your heart. I have lived with the fear of this happening. I cannot imagine what you’ve been through.
I have crohns, I also have a permanent stoma.
I was on infliximab for almost five years. I was switched to vedolizumab which I reacted to. I have now had my first treatment of stelara. That was a couple of weeks ago, since then I have had cold like symptoms and horrendous fatigue. My next injection is not due until January. Has…