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ashleyf answered a question 6 hours, 25 minutes ago

Hello there, @topazsag. We are sorry to hear that you have been living with this pain for so long, we know it is not easy. If you do not feel like you are being taken seriously or fully listened to, I think that you should get a second opinion if you are able to! While the biopsy is of course important, your symptoms and complications are too. I…

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Owenband commented a story 1 day, 1 hour ago

Hi Ashley. As of this moment, the Crohn’s Disease isn’t an issue, though I do have “structural ” issues from the multiple surgeries. Due to a large amount of scarring, I am still hospitalized a couple times a year. I have a new specialist that performs a procedure ( he perfected) that stretches open the bowel where the scar tissue is. As far as…

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ashleyf replied to the topic Anyone in a clinical trial for Filgotinib? in the forum Treatment 1 day, 2 hours ago

Hello there Connie, thanks for reaching out to us. Deciding whether or not to partake in a clinical trial is hard for many people, you are definitely not alone. I wanted to share with you a few articles from our site that discuss clinical trials and how one might make the decision whether or not it’s right for them:…

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ashleyf commented a story 1 day, 3 hours ago

Hi there. It sounds like it’s been a long journey for you these past few years! It can often take some time before finding what treatment plan and dosage helps stabilize your symptoms, and it can change overtime. I wanted to let you know that you’re not alone in experiencing joint inflammation from your IBD, you can read more about it here:…

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ashleyf commented a story 1 day, 3 hours ago

Hello there Owen, we appreciate you opening up and sharing your story here with us. That must have been a tough time for you, to have to make a quick decision like that knowing that you need money/insurance because of your condition. You did what you had to do to take care of yourself! If I may ask, how are you doing these days? -Ashley (Team Member)

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Pam.Kingsland commented a story 1 day, 3 hours ago

@combspartyof6, thank you so much for sharing yours and your daughter’s story. She sounds like such a strong little girl! I hope you both continue to keep fighting and keep advocating! Please reach out to us anytime, we’re here for you both! <3 – Pam (team member)

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Pam.Kingsland commented a story 1 day, 3 hours ago

Thanks so much for sharing your story with us, @casey13starr! All of your roles and aspirations are a inspiration to just keep fighting and pushing through! I’m sure sometimes it can be difficult, but your attitude is everything! Never give up. Just keep going! Stay strong. -Pam (team member)

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hopefulskeptic replied to the topic Ulcerative Colitis or just hemorroids? in the forum Symptoms 1 day, 4 hours ago

Hi jining,
The starving I guess helped. I went to an Ayurvedic clinic this year and performed their cleaning procedure which included a week of drinking ghee (clarified butter) and being on a very strict diet. They also gave me some herbal medicines. Overall, I was on a pretty strict diet for a couple months. The dieting was quite horrible because…

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Owenband shared a new story 1 day, 7 hours ago

People have asked me, “how did a nice Jewish boy wind up working for the notorious cocaine overlord Pablo Escobar in the late 1970’s and 1980’s?”. It’s a long story. After falling off the wait list to Harvard Law […]

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Pam.Kingsland posted a new activity comment 2 days, 6 hours ago

I know so many here can relate to this uphill battle that you’re fighting! Keep strong and know that we’re all here for you! Sending hugs and strength – Pam (team member)