Drug induced lupus from remicade??
Have had severe joint pain MIRRORED in my ankles first and now knees, ankles and elbows since march to now, so intense that I can’t cook, clean or work. Bed bound for 6 months. No lupus blood work has come back positive only a positive ANA with a homogenous pattern. Finally saw a rheumatologist this Wednesday and they really aren’t sure whats wrong with me as my bloods are normal. They don’t believe my theory of drug induced lupus as I have no rash and the journal reading shes done on it says it should include some positive bloods of lupus accompanied by a rash. Just wondering if anyone has had just joint paint and has been diagnosed with DIL because of remicade/infliximab. I have been on it for 8 years, developed scalp psoriasis 4 years ago. Apart from that it has kept my crohn’s disease in remission.
Hi
, thanks for reaching out! I personally haven't heard of anyone in the community discussed DIL due to remicade/infliximab, but maybe some other members will weigh in here. That said, joint pain is absolutely a symptom we hear about often and it's one of those symptoms from Crohn's that you probably wouldn't expect. You can read more about it here: https://inflammatoryboweldisease.net/symptoms/inflammation-of-the-joints-skin-and-eyes/ I hope this helps. Reach out anytime! - Pam (team member)
