8 years ago I started getting very bloated with bouts of diarreah and consultation. I would eat and my abdomen would balloon up and be so uncomfortable. The pain was mainly on my lower right side.
The doctor sent me for a sigmoidoscopy which I thought was a bit pointless at the time since it’s on the other side of bowel where my pain was. It came back clear all but one pile.
I pushed on for tests thinking I could have a gynaecological issue and they gave me a laparoscopy which they found nothing but said I had a lot of very movable bowel.
Since then I’ve had MRIs, bloods, fecal tests, sehcat scan, ultrasounds, and yesterday a colonoscopy which I have been pushing for, for years!
The procedure was agony! I was sedated with gas and air but they could only go as far as mid transverse due to ‘looping’ and my extreme pain, I was so upset! I really wanted to see what was going on in my right side of bowel, so now it just seems pointless like they’ve missed the bit they needed to see! They took 4 biopsies but said it looked normal, but I would expect that since my bowel doesn’t hurt there, only the lower right side which feels swollen and almost tight and knotted like something is there all the time.
Over the years my symptoms have worsened. I now have orange/yellow foul smelling ribbon stools which are mushy and loose, multiple times a day! And pain and bloated in my lower right side.
Symptoms have also began to affect my nerves it would seem, as for a couple of years I’ve started with right side groin and hip pain which they have no diagnosis for, it flares worse when my bowel is bad. And I also get a pain in my right side of my head about an inch above my ear, and ringing in my ears.
The symptoms peaked about a year ago and I had a strange TIA or migraine type turn where I ended up in A&E and they said I had a fast heart rate but didn’t know why and suggested beta blockers.
I’m worried that I have disease in my lower right bowel, and that it could be scarred and hardened, and that this is missed as they can’t seem to reach it with the camera.
The doctors are so dismissive now due to the amount of tests I’ve had. They are getting quite rude and short and lately have said things like ‘it’s just IBS live with it!’ And ive literally cried down the phone.
This colonoscopy was a last resort and I had to persist so much for it! They kept saying it’s invasive and they just doing it for my peace of mind as they’re sure I have IBS nothing else.
And now I feel like I’ve screwed it up because it was agony and they couldn’t get round all the way to the part they needed to check! I don’t know what to do next. If they tell me that’s it and it’s just IBS and that’s the end of the road. Then I don’t know what I will do! I can’t live like this with orange diarreah every day, it’s exhausting I feel so drained! Tired, energyless! I eat so healthy but feel like all my nutrients are draining from me! My hair has thinned so much over the years and my gums are sore, this cannot be normal 🙁