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Hair Loss

Hiii... I got diagnosed with Crohn’s disease last year in May. Many doctors were on my case yet they didn’t know what I had until 5 days in the hospital. I had scars on my legs that were bleeding a lot. After my biopsy and a endoscopy, they found out I have Crohn’s disease but I didn’t have any stomach problems in the past. Anyways, it’s a year later, I have been getting remicade infusions for the past year. Lately, I have been noticing that my long thick hair is now long thin hair and I’m losing eyebrow hair. Doctors say it’s a vitamin problem but I don’t know what to think. Any idea y’all know what my problem is? Thanks

  1. Hi, , sorry to hear you are experiencing this. Unfortunately, this is a symptom that some with Crohn's disease have mentioned dealing with. I hope this is helpful. Wishing you a lovely evening. Hugs, Jessica, InflammatoryBowelDisease.net Team Member

  2. I did when I was first diagnosed and put on Humira

    1. So far I am in remission so that's a real positive.

    2. Hi . That is fantastic news - always great to hear positive stories. Best, Richard (Team Member)

  3. Yes, when I first was diagnosed, my hair came out in clumps. It comes back but not as thick.

    1. did you or your doctor attribute the hair loss to vitamin or mineral deficiencies (due to IBD) or a side effect of a medication? I'm curious to hear more about your experience if you're willing to share. Wishing you a gentle day. -- Warmly, Christine (Team Member)

  4. Started taking sublingual biotin and used rogaine for women. It took months, but restored better than ever. Biotin is daily.

    1. thanks so much for sharing what's been helpful for you managing hair loss. Was this a recommendation by your doctor or something you found on your own? (Of course, for those considering trying a new supplement it's still good to check in with one's doctor to be sure it's a safe and viable option as some supplements can have side effects or interactions with medications.) I'm so glad that you've found something that helps. And kudos to you for being able to stick with it for months even though it took so long to notice a difference. How wonderful to have hair that is restored better than ever! Wishing you a gentle day. -- Warmly, Christine (Team Member)

    2. My PA suggested it "off the record"

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