Medical related frustrations

I have read in my report from my colonoscopy the words Crohn's disease. I have a few of the symptoms and signs of Inflammatory Bowel Disease including ulcers in the terminal ileum but because I don't have more symptoms my gastroenterologist doesn't want to give me a solid diagnosis. However when I just looked at the results of my metabolic panel I realized that I was just one point from being low on my calcium and that my alkaline phosphatase is elevated at 159 which is indicative of a problem with either my liver, bones, or gastrointestinal tract. I have been in pain since the mid part of August and that is located in my lower right abdomen, upper abdomen and sides, and my back. But a CT scan with contrast hasn't found anything like a bowel blockage or anything that would point to a physical cause for the pain. My only guess is that the pain is radiating to other parts of the body. My entire digestive system is a mess because I have multiple things going on. But having IBD has made more of an impact on my life and I know that this is a lifelong condition. I have basically been told to take Tylenol, a fiber supplement, and calcium citrate with D3 and to peel and thoroughly cook produce. No more raw produce with skin. Nothing with seeds or nuts. No whole grain products. I have to modify my diet. Exercise of course. I cannot start any form of treatment right now. I believe that I have IBD. I have done my research. I understand that this isn't a cookie cutter disease where every affected individual experiences the same things. For example I alternate between diarrhea and constipation. I get severe abdominal distension from gas. I have gastrointestinal tract spasms and pain and the pain hardly lets up. I get the sudden urges to go to the bathroom. I can go up to 4-7 times a day. Or I can go 2-3 days without a bowel movement and everything is absolutely still. However a few days of constipation ends with diarrhea. The only indication that I need to get to the bathroom is when everything is starting to gurgle and I can just about tell what part of the gastrointestinal tract its coming from. Sometimes I don't eat because I know that when I do I'm going to end up in the bathroom. If I have to be somewhere I try to go on a empty stomach to avoid an embarrassing situation. Sometimes I don't eat because I don't have any appetite. Sometimes I don't eat when I have been having to spend a part of the day in the bathroom because I don't want to add more to it. And if I haven't been having any bowel movements in a few days I try to eat what I can to try to get stuff moving along but that's not always successful. I'm just frustrated with everything.