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Pancreatitis Attacks with UC? Non-drug related.

I'll try to keep history short and get to core of my question.

In 2010 cramping and irregularities led to a colonoscopy. While it was pretty clean, some red marks were tested and showed signs of Ulcerative Colitis. My worst hospital-bound flare, actually occurred after my colonoscopy and diagnosis. After 6-9 months of trial and error with various drugs, and getting hooked on prednisone, I eventually tried SCD Diet, strictly, which helped me get off all drugs - and for the most part no problems since. I haven't been the most regular person, but no flares, cramping, no real urgency to go. I've evened loosened restrictions on diet - stick with whole foods, but still avoiding refined sugars, gluten, but including other grains like rice and oats, and still medication free.

However, over the years I've had a few "abdominal attacks". Most recently one January, one in February which took me to the hospital. These attacks are symptomatic of gallbladder attacks - upper abdominal sharp 10/10 pain, that last about 30 minutes to 1 hour, usually accompanied by vomiting. In the hospital, Pancreatitis very elevated (lipase) and there were some signs of Gallbladder issues - so gallbladder removed thinking probable cause for Pancreatitis. Otherwise in scans Pancreas looks good.

Was recovering great, no issues with food, then two weeks after surgery, another attack, back to hospital, lipase slightly elevated, but this time liver numbers up more. Theory was residual stone or sludge, but nothing showed on CT or MRI (MRCP). Discharged, two weeks later another attack - back in the hospital now, again with pancreatitis.

These past two attacks have showed inflammation in my bowel which has resurfaced discussions about Ulcerative Colitis. The latest theory is that somehow my pancreas is being "angered" by a UC flare.

So my question - has anyone else with UC/Crohn's had issues with pancreatitis, connected to an IBD flare?

Any insight appreciated...

  1. Hi ,

    I'm so sorry you are going through this pain. It sounds so awful.

    I personally have never had pancreatitis so I cannot offer any suggestions but I'm sure others from the community will soon chime in.

    In the meantime, I hope you get relief from the pain and I hope you get answers soon.

    Sending strength your way,
    Elizabeth (team member)

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