Should I bother?
Hi,
Apologies if my asking offends anyone, I haven been diagnosed but I understand IBD can make life very difficult for some so if I'm overreacting I'm really sorry.
So iv always had a really bad gut. My farts are HORRENDOUS. Bloating. I'm literally full of gas and poo 🤣 a few years a go stopped eating gluten to help with this (I'm not intolerant it was just to rule out) Slightly better on the wind front but I poo SO much. Like I always thought it was normal. But as iv become more open about my problems with people I know, they convinced me to get checked. Anyway iv had poo samples FIT and blood tests for celiac, inflammation etc and it's all come back fine no further action. I go to the toilet within an hour of eating a meal. Sometimes almost instantly. I poo out bits of food 🤮 like that hasn't digested. I get poorly way more than anyone I know. Iv been in hospital twice with it on a drip due to dehydration.. Sickness, extreme diarrhea so much that it's just like blood water coming out full force. No one else in my household gets it 🤷 (This happens maybe every 3 months on average, over the past few years, it's not all recently) When this happens I lose weight just over night.. I was poorly about a month ago and i lost 8lb in 24hours. I haven't put it back on. I eat well. I exercise. But Im always tired I could sleep forever. I work full time, I have kids, I'm healthy apart from some anxiety issues which I'm on medication for but again like I said none of this is new. Iv always thought Iv just got a really crap immune system and catch bugs all the time? Also to add I always suffer with mouth ulcers like really regularly. I have good oral hygiene and I don't have any problems with my teeth. But jheez my mouth can get so sore it puts me off eating sometimes..
Anyway like I said I had these basic tests and it's come back 'normal, no further action'. What do you think? Everyone's telling me to keep at it go for a colonoscopy but I feel like a drama queen.. am I? I won't be offended haha. I just keep reading things and it all just sounds like me 🤷 albeit a lot milder than some but. It affects everyone different right?? Really sorry for the long post. I just want someone to talk to about it and get an opinion.
Thanks guys ❤️
Definitely contact a GI and get tested. Colonoscopy, blood work, stool test. You must look further into this, especially if you are bleeding when you have these episodes. Here is an article that goes over diagnostic testing: https://inflammatoryboweldisease.net/diagnostic-tests-and-procedures You are definitely not overacting. I wish I would have gotten tested sooner. The sooner you test, the better. Keep us posted. Hugs, Elizabeth (team member)
I had two stool samples and a blood test done last week at the doctor's and both came back normal 🤷 is it possible for these things to be missed on such checks? Like what if I'm chasing something that's not there and everyone thinks I'm pathetic 🙄 it's also worth noting my aunty has Crohn's.. but I'm not sure what that means in terms of it being hereditary. Thanks for your reply. x
Hi
. I want to share with you this other Forum conversation on the topic of if it is possible to have Crohn's/UC without a positive blood test: https://inflammatoryboweldisease.net/forums/crohns-blood-test-question. You will note how in some cases it took the camera and biopsies to get a proper diagnosis. I want to echo Elizabeth ( ), don't give up looking for answers - you deserve it. Hoping you get some soon and some relief. Wishing you the best and please feel free, if you like, to keep us posted on how you are doing. Richard (Team Member)
Thank you so much! Really helpful exactly what I needed. I'll definitely post again and keep you updated.. maybe I just have a dodgy belly and there's nothing wrong but.. I'd like to know for sure!!
You're all fab. And really kind and understanding. Thanks for making me feel welcome even tho I'm not diagnosed! XxSo iv had another appointment with the GP.. I requested further investigation and colonoscopy via e-consult and she just ignored that..she said its reassuring that my blood and stool samples were normal.. told me to take lanzaprosole for a month and gave Mebeverine, to take before each meal.. for IBS.
Hi
. It definitely sounds like the doctor is treating you for IBS. I certainly hope this helps, but ,if you feel you are not being heard, please don't hesitate to seek another opinion (it would certainly be understandable). If you do want to communicate with some people with IBS to compare their experiences, we have a sister-site for that at https://irritablebowelsyndrome.net/. That said, know that this community is here for you and please feel free to continue to keep us posted. Best, Richard (Team Member)
