So tired and want to give up
Am sorry if this is depressing but am in my feels today am so fed up with life the pain I deal with everyday is becoming unbearable I have accidents everyday an at the age of 34 it’s so much to take I’ve been like this everyday for over a year and although the hospital is trying there best to help me I feel like anytime I do complain it’s becoming frustrating to everyone around me I feel so low and alone I just needed to write my thoughts down to get them out feel like this is my own safe space
my heart goes out to you, and thank you so much for allowing this to be your safe space to share your current thoughts and feelings. Many of us know this feeling all too well, and as difficult as it may seem right now, your current situation is NOT your final destination. Things will turn around and you will regain the life you miss.
Have you talked to your doctor about medications to help with the pain and constant urgency/incontinence? Hopefully there is a treatment that can ease your symptoms and reduce the pain.
--Julie (Team Member)my pleasure! I am glad you are able to have open conversations with your doctor, and hope that surgery helps you as much as it had for me! We are always here to listen and offer guidance in any way. Thanks for being here!
--Julie (Team Member)thank you so much really appreciate it
Hi
I think we all feel this at some point when dealing with IBD. I know from personal experience that I have been exactly where you are today. I got Crohn's just as I turned 20 and at the time not very many doctors knew what was going on. I lost so much weight, in pain all the time, not to mention losing many people around me because of Crohn's. It took me years to come to terms with it. I started a blog to vent and that seem to help quite a bit and in turn helped others. I had a hard time dealing with incontinence as well but finding the right meds and what to NOT eat, helped immensely. Have you tried loperamide (Imodium)? I still take this.
I have had Crohn's for over 34 years now and yes it's been hard, as it is for all of us, but there are so many of us, we are all here to help and listen.
Curious as to what meds they have you on. If you're not on a biologic yet, maybe ask your doctor about them. They were a "godsend" for me after trying many, many different meds over the years.
Let us know how you get on.
You are definitely not alone.
Vern - IBD Team Memberthank you so much for for reaching out means a lot I’ve been on steroids, 2 types of biologics vedolizumab and ustekkinimab am a non responder to both I’ve also injected myself with amgiveta I’ve had the enemas anything that they could give me am now in talks with my specialist to go down the surgery route, I have tried Imodium but my gp doesn’t like me taking this because I have blood loss not sure why, I really appreciate you reaching out means more than you know because I have felt so in the dark with my ibd I’ve now realised how common it is and am now discovering new ways to speak to people who are in the same boat
I. Promise. You are not alone. I've been there, and I know other people with IBD that have too, in terms of the physical stuff and the emotions.
I am at least glad to hear that you feel like you're team is trying, and want to help.
What's going on at the minute in terms of treatment, or tests?
- Sahara (team member)how are things going for you at the moment?
- Sahara (team member)
