Is it worth it? An ostomyYou may have Crohn's or colitis, but not everyone with IBD has an ostomy. Those who have an ostomy needed one. Most likely they have it to save their lives...reactionscomments
5 Charts that Capture What it's Like to Live with Ulcerative ColitisCharts that illustrate what it feels like to live with ulcerative colitis. When you live with ulcerative colitis or any chronic condition, frequent research, and constant health vigilance become a...reactions2comments
Just Because I Can Today Doesn't Mean I Can TomorrowHow often have you heard this? "Why can't you come out THIS time?" "Maybe you need to go get a second opinion?" "I don’t think your IBD requires surgery." "Have...reactions3comments
Why You Should Be Open With Your Crohn's DiagnosisI know, I know. This can be kind of an annoying topic, especially for those of you who are introverted and private by nature. But! I want to share from...reactions4comments
Beginner's Guide: What to Pack For A Weekend AwayWhen I was first diagnosed, I had no idea how to pack a bag for a vacation or week away without overpacking, much less for even one night away. I...reactions1comment
When Fear Creeps InHere is my reality of life with Crohn’s Disease (in remission). I started this blog post in a note on my iPhone while sitting in a public bathroom stall. Ironically...reactions2comments
Everything You AreAs we fight every day to remember who we were, the person we once were, and how we used to be, we must always put that same energy into reminding...reactions1comment
Fiber and IBD: Friend or Foe?Understanding diet and IBD can be a bit of a minefield at times. Some days you can eat anything you fancy and other times you only have to take a...reactions5comments
About To Live My Best Life, But First... Infusions! [PART TWO]Part one of this post can be found here. I saw the IBD specialist. It was a journey. Between insurance mix-ups and things not being covered, I swear I wasn't...reactionscomments
Australia is behind the times - IBDI'm frustrated. In Australia, there is very little support or organisation for people with IBD. There is not even any statistics or data on people living with IBD in Australia...reactions1comment
About To Live My Best Life, But First... Infusions! [PART ONE]Lately, I’ve really been feeling the need for change. Not just lately. It actually started a while ago. I’ve spent much of my life sick or taking care of the...reactionscomments
Things That Annoy Me As A PatientAfter being a patient for more than 15 years, there’s a lot I’ve observed - good and bad. More recently, I’ve been in and out of a lot of specialists...reactions3comments
Do you wait for the other shoe to drop too?Life is not always smooth sailing. Some days I wondered what I did in a past life to deserve this one or even wondered if I have paid my dues...reactionscomments
You know you've had IBD far too long when...When it comes to IBD, we're all in the same boat, but you can usually spot the difference between the newly diagnosed and the old-timers who feel as if they've...reactions3comments
Preparing to Become a Mother with Crohn's Disease - Part 2In my last post, "Preparing to Become a Mother with Crohn's Disease - Part 1", I shared several of the things that have stood out for me in planning for...reactionscomments
I’m Here. How Can I Help? 5 Ways to Be SupportiveThere’s a lot of pressure and misunderstanding about mental health. Knowing what to say and do can be tricky. You can be a positive force for friends and loved ones...reactionscomments
Guided MeditationMeditation has been shown to have multiple benefits on a person’s health, both physical and emotional. Regular meditation can help relieve pain, increase positive emotions, and improve memory and concentration...reactionscomments
Living With IBD: A Podcast Interview with Natalie HaydenI recently interviewed InflammatoryBowelDisease.net advocate Natalie Hayden for the Health Union podcast, Living With. Natalie talks about her diagnosis and how her life has changed now that she lives with...reactionscomments
World IBD Day: In 2019, is awareness of IBD actually any better?Awareness is a word we hear a lot about when it comes to living with IBD. And with each World IBD Day comes another chance to raise awareness of Inflammatory...reactions2comments
Why IBD Awareness MattersIBD...a fad it seems? When I was diagnosed about 12 years ago, I rarely saw commercials for medications to help with IBD. Now, I would be surprised if I didn’t...reactions1comment