My son's story
Last updated: May 2018
Hello everyone, my son was diagnosed at age 15 with indeterminate UC. It was very severe and no medication or treatment worked to try and get him into remission. A year later he was having j-pouch surgery. Fast forward, he is now 23 and had his pouched scoped and told he was misdiagnosed and now he has crohn's. He is very disappointed. It feels like such a setback. As a mom, I worry. My understanding is that crohn's can be progressive if not gone into remission.
What has been the most helpful for managing IBD symptoms?