poonicorn
"Spent 6 hours in the hospital last night because of the agonizing pain and inflammation of a flare while unmedicated (waiting to hear back from a new GI). Had a CT with contrast and the lymph nodes in my abdomen were huge. Some pain/inflammation management and some fluids later, I was back home and super tired. Slow moving today but feeling okay. "
Hi @poonicorn, just checking in to see how you're feeling. Hoping you've found some relief. Sending positive thoughts - Pam (team member)
Thank you @pam-kingsland ,
I really appreciate it. I wish I could say I was doing better this week but not much has improved. Hopefully I can get some temporary relief soon to get me through until I can see the GI. That being said, I will probably have to take awful prednisone. Hoping for better days soon
"Today I received my bathroom access card in the mail! I signed up for it about four months ago and was starting to wonder if I would receive it at all. It came nicely wrapped in an info pamphlet with both crohns and ulcerative colitis sections and a little "taking to your doctor" guide. Pretty neat! "
Wow, what a pleasant surprise! We're glad to hear that you finally received the card and that it came with such useful information. Thanks for sharing with us. Best, Ashley (Team Member)
That's so great to hear! Glad you received it and will be able to have another tool to help with this disease. I too have one, and it is very helpful!
Always dancing,
Elizabeth (team member)
"I've gotta say it. My colon has been on the fritz today. 😂 Lately my upper gi has been taking all the hits but today my body decided to switch things up on me. I actually had to leave work early in fear of having an accident of just slime without extra clothes in my locker. I felt bad because we were short staffed today but I have had too many close calls 😂"
I'm so glad you listened to your needs and put your health before people pleasing @poonicorn! I know so many here have been in your shoes and have had bad days like that. You are not alone! Thanks so much for updating us. Sending healing thoughts your way, and I hope today has been a better day for you. Thinking of you!
- Shelby, InflammatoryBowelDisease.net Team MemberYou are so not alone in going through this. I have had to leave early so many times due to intense urgency and not wanting to have an accident at work. It's the worst feeling but hey, at least you know you aren't alone in going through it. Sending big hugs your way!
Always dancing,
Elizabeth (team member)@shelbycomito
Thank you for the positive vibes! I have been learning more and more that sometimes sharing is most helpful. As embarrassing as it can be some days, other people need to know just that: you're not alone. I can't imagine going back to when I thought I was crazy for being so sick and to not see so many stories or read kind words of encouragement. Sometimes sharing and having a good laugh about it is all we can do to ease our minds. Hope all is well for you too and happy holidays!
@thedancingcrohnie
Thank you! Honestly, I probably would have stayed if I had spare pants that day because I'm stubborn. I will say though, the longer I go with this disease, the more open I seem to become to talking about it in just about any setting. I'm just out here embarrassing myself and giving a good laugh to the others so we can be embarrassed together lol.
Hope all is well on your end! Happy holidays!Me too. I used to not like talking about it at all. Now, it doesn't even phase me. Whenever anyone has a question, I am always open and willing to discuss.
I'm doing pretty well, thankfully I got to enjoy the Holidays this year all though I am in a slight flare. Happy Holidays to you too!
Always dancing,
Elizabeth (team member)
"Currently sitting on the bathroom floor at work because I am just so weak and lightheaded from this weeks hell of a flare. This week has been a rough ride and I've only had to work three days. So glad it's almost through. Still have to finish today's load. Ugh I need a nap and some fluids"
So sorry to hear how you're struggling this week, @poonicorn 🙁 You're almost there.. remember to stay hydrated and keep fighting through! Sending you strength and positive vibes - Pam (team member)
Thank you @pam-kingsland ! Made it to another weekend, finally got to eat at home after work, and now I am ready for a nap. Hoping my body will let me rest for a bit