Stomal Queen!Depending on which country you are from, you will call them a Stomal Therapist, Stomal nurse, Wound care nurse, ostomy nurse, or if you're like me; My godsend Stomal Queen!...reactions1comment
My Metamorphoses With IBDI recently attended an event for patients with ulcerative colitis where we were asked to come up with a word to describe the disease. This is no easy feat. There...reactions1comment
Missed ChildhoodI missed out on a childhood. I'm not really sure which specific thing to blame it on. Could it have been the abuse I suffered as a child or the...reactionscomments
Handling "Regular People" Sickness as an IBDerGiven that living with inflammatory bowel disease (IBD) can truly wreak havoc on all aspects of a person's body and life, I am never sure how to handle "regular people...reactions1comment
3 Things to Look for After SurgeryTo be completely honest, I wasn’t sure what to expect after surgery. I had a lot of people telling me what I would need and giving me tips on how...reactions1comment
Congress Approves 21st Century Cures ActThis past week, Congress approved a new healthcare-centered bill called the 21st Century Cures Act.The bill allots $6.3 billion dollars towards achieving several much-needed healthcare initiatives. The bipartisan bill passed...reactionscomments
Romantic Relationships with IBDIt is no secret that relationships are hard work in general, but when you add a chronic illness into the mix, it can change a lot of things. Some for...reactions3comments
3 Tips for Surviving the HolidaysHolidays are meant to be a time of joy and celebration. Unfortunately, the holidays and stress often go hand-in-hand. The traveling, the shopping, the cooking and the family feuds can...reactions1comment
Painsomnia, Psych Meds and Mental Health Part 2I would like to continue where I left off to some degree in Part 1 of this article. Again, I want to reiterate that I share these personal, oftentimes hard-to-talk-about...reactions1comment
Confessions of an IBD NinjaMost people living with Crohn’s disease or ulcerative colitis will tell you that inflammatory bowel disease (IBD) is an invisible illness. Life with IBD is isolating. Many of us are...reactions1comment
Our #GivingTuesday Campaign#GivingTuesday is a global day of giving fueled by the power of social media and collaboration. Celebrated on the Tuesday following Thanksgiving (in the U.S.) and the widely recognized shopping...reactionscomments
The Stress of Events with IBDI had my fair share of weddings this past Summer. And I was in the weddings, as a groomsman. Of course I felt honored to be in my best friend's...reactions5comments
I’m Thankful for Crohn’s Disease this November?Many Americans honor the holiday of Thanksgiving by reflecting on what they are thankful for in life. It’s easy to be thankful for the good things like a bonus you...reactions1comment
Being Chronically Ill is a Full-Time JobBeing chronically ill is absolutely, without a doubt a full-time job! Obviously, the severity of a person’s disease will dictate how much time, energy, and money is spent on “coordinating”...reactions3comments
Aiming for that Tree ChangeI was lucky that my surgery put me into remission, but I wasn't lucky enough to have never felt the crushing agony of living with Crohn's disease. Being in remission...reactions1comment
HIPAA Rights to Request Your RecordsDid you know that you can get a copy of your medical records? I don’t know when I learned that this was a thing, but I do remember that this...reactionscomments
I Am Strong, but I Am TiredMy mom sent me a quote the other day that said: "I am strong, but I am tired." I shared the quote on Instagram, and my facebook support page as well...reactions3comments
A Patient Voice in Clinical Trial Development?As many of you may already know, a clinical trial is a research study that tests how safe and effective a new treatment, diagnostic test, or other medical intervention is...reactions1comment
There's Always HopeWhen I was going through the roughest parts of my disease, hope was the furthest thing from my mind. I was surrounded by pain, discouragement, weakness and depression. I relied...reactionscomments
Embarrassing Noises with IBDI think a lot of people who suffer from a form of inflammatory bowel disease (IBD) can attest to the fact that sometimes our stomachs make very odd noises. It...reactionscomments