Anyone here been told they had IBS but actually had IBD?...Hey everyone. I'm new to this group. I've been having what seemed like flare-ups of symptoms that started 3 years ago and I've always muscled through them because I'm not...reactions1replySymptoms
What to Say When People Want to Help...As a Crohn’s or UC patient, you may have had a stay (or 100) in the hospital. I, personally, was hospitalized at least once every year from 2011-2014. While each admission...reactions1comment
Was anyone afraid of going to the doctor and them acting like you are crazy?...At 18 I found blood in my stool told my doctor and they sent me for a colonoscopy (my dad passed away of colon cancer at 40). They said it...reactions3repliesLiving with Ulcerative Colitis
Medication Struggle...I first felt symptoms when I was 13. We went to a gastroenterologist and he confirmed that it was Crohn's Disease, he then suggested that I was put on Infliximab...reactions1comment
(Re)Mission Impossible...I was diagnosed with Crohn's Disease at the age of 8. It was a roller coaster of a time to get to that diagnosis, but we eventually found our way...reactions3comments
It's a Journey...My story began later in life. At age 62, happily retired and enjoying life, I started having symptoms that could not be ignored. Found out I have mild/moderate UC from...reactions1comment
We got this!...Crohn’s disease started to wreak havoc on me at 3 years old. My parents took me to many doctors and the emergency room a lot. No one could figure out...reactions2comments
IBD: Remission & Anxiety...I'm on a mission to remission. If you’ve read parts of my story before, you’ll know that it took me more than 6 years to get diagnosed with Crohn’s disease...reactions5comments
Long Road...I went years un-diagnosed, many doctors telling me it was in my head. I was persistent enough to keep asking questions and find a doctor that would listen. I was...reactions6comments
Crohn's kicks my butt...I have had Crohn's all of my life, but was not diagnosed officially until two years ago. Before I was diagnosed, I couldn’t even walk without stomach pains forcing me...reactions5comments
3 Ways To Practice Self Love...Living with inflammatory bowel disease takes a lot. One major thing being self-love. It takes a strong person to live with the things we do and bear the burdens we...reactions1comment
Colitis diagnosis...I was diagnosed on Dec 18 with ulceractive colitis, with a follow up appointment April 19, the consultant gave me some suppositories to take which helped with my bleeding but...reactions3replies
My story, waiting for a diagnosis....It all started 10 weeks ago. It was 4 days before Christmas and I started to suffer with diarrhea. It was very watery diarrhea and I would have this several...reactions4comments
Thoughts that cross my mind as a mom with IBD...Each and every day for the past 13.5 years I’ve wondered. Will today be the day? Will today be the start of another flare up. No matter how long I’ve...reactions1comment
Neilanjan ‘Neil’ Nandi...Dr. Nandi was previously a health leader on InflammatoryBowelDisease.net. Multiple life encounters gave shape to Dr. Nandi’s interests where he has dedicated his career to the management, research and education...
Helping one another productively...I found that answering the questions in the survey was actually cathartic. I’ve read many of the stories that other IBD-ers have submitted. Are there common threads that manage, help...reactions2replies
We Get to Carry Baby O...Recently, I wrote the post “It’s Okay to be Okay” - a significant realization I’ve come to this year in my life and my journey with Crohn’s disease. Today, I...reactions2comments
It’s a marathon...I was diagnosed with UC four and a half years ago after a month of symptoms. For three years, my UC was moderate to severe, never in remission, but never...reactions1comment
Long time Crohnie...I started demonstrating symptoms at age 8 and was finally diagnosed at age 10 with Crohn's Disease- that was in 1979. So now here I am... 40 years later.... 4...reactions1comment
Why You Should Double Check Your IV Labels Before Infusions Start...Last year, the unthinkable happened at my nephew’s infusion center. His biologic infusion was administered to the wrong person. The person who received his infusion was a 19-year-old female. What...reactions1comment
