my Daughter

By mommabear

1 min read

we found out that my daughter had Crohn's when she was five years old. She is now 21. all this time she had Medicaid to help with the expense of her Remicade. in February when she turned 21 our state Medicaid said that because of her age they will no longer cover her. I have yet to be able to find any policy that will help us with the expense. and the people that make Remicade will not help us unless she has some sort of policy and then there is no guaranty that they will. can someone please help me

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dana Member
Hi mommabear! Thank you so much for being a member of our community and sharing about your daughter. We truly hope she is doing well and gets the care she deserves. In addition to the comments and advice from other community members, I thought you might find this article regarding medical expenses helpful: <a href='https://inflammatoryboweldisease.net/resources-cost' target='_blank'>https://inflammatoryboweldisease.net/resources-cost</a> Your daughter is so very lucky to have you as a great support system, you seem like a wonderful and loving mother! Hope this helps! Dana (InflammatoryBowelDisease.net Team)
1. mommabear Member
 Thank you Dana, I will check into the information you gave me. Cristina
julianne9 Member
Dear Mommabear, Have you tried the plans available through the Affordable Care Act? Most of the plans are thru very reputable companies and if your daughter has little to no income you may be eligible for a tax credit meaning your premiums could be much lower than the normal rates for the plan you and your daughter choose. I am sorry you and your daughter are experiencing these problems with coverage and I hope you find a solution very soon. As a Crohn's patient I realize how essential it is to get your meds and keep your disease in check and improve quality of life. You both have my very best wishes. Sincerely, Julianne
kathychavez Member
Sorry to hear, there is nothing more frustrating and stressful than having to worry about if you're going to be able to pay for your next refill. The last thing you or your daughter need is stress. Try: Johnson & Johnson Patient Assistance Foundation Johnson & Johnson Patient Assistance Foundation, Inc. (JJPAF) provides free prescription medications to eligible individuals who do not have insurance coverage for their medicines and do not have adequate financial resources to pay for them. Please contact a JJPAF program specialist at 800-652-6227 (9 AM to 6 PM ET) or visit the foundation website at <a href='https://JJPAF.org' target='_blank' rel='noopener noreferrer ugc'>JJPAF.org</a> to see if you might qualify for assistance. Good luck, best wishes.
bellacm81 Member
If she doesnt have a job or her income is below a certain amount, she can still be covered by medicaid. Im 35 and jave been on medicaid for almost 14 years...
bellacm81 Member
Oh, one other thing... if her crohns is severe, it is on the list of diseases that qualify for disability. If she can be approved for disability, she should also qualify for medicare. Just a thought.
Matt Nagin Moderator
That is a really tough situation. I'm sorry to hear what you are going through. Try to get her her own insurance policy that covers Remicade. Or get her on disability. It is terrible that they won't cover her but hopefully the above or some other solution will help. Best, Matt (Team Member)