Long RoadI went years un-diagnosed, many doctors telling me it was in my head. I was persistent enough to keep asking questions and find a doctor that would listen. I was...reactions6comments
Crohn's kicks my buttI have had Crohn's all of my life, but was not diagnosed officially until two years ago. Before I was diagnosed, I couldn’t even walk without stomach pains forcing me...reactions5comments
My story, waiting for a diagnosis.It all started 10 weeks ago. It was 4 days before Christmas and I started to suffer with diarrhea. It was very watery diarrhea and I would have this several...reactions4comments
It’s a marathonI was diagnosed with UC four and a half years ago after a month of symptoms. For three years, my UC was moderate to severe, never in remission, but never...reactions1comment
Long time CrohnieI started demonstrating symptoms at age 8 and was finally diagnosed at age 10 with Crohn's Disease- that was in 1979. So now here I am... 40 years later.... 4...reactions1comment
A glimmer of hope...I was diagnosed with Ulcerative Colitis when I was 28 years old. It took about 2 years to get into remission but once I did, I was fairly stable. Unfortunately...reactions2comments
Years to Diagnosis, Significant Impact to Mental HealthLike so many others, it’s been a long journey and I know I've still got further to travel. I’ve had pain since my early teens, went through a number of...reactions2comments
Never Surrender to Battle Fatigue: Reflections from a UC WarriorIt’s Christmas time. A crooning cowboy wails “We Wish You a Merry Christmas” over the store intercom. I’m rubbing elbows with a throng of other holiday bargain shoppers in a...reactions8comments
50 Years of Crohn'sWhen I was first diagnosed, it was called ileitis. I was 17 years old and had no clue how serious this was. There were two treatments, Prednisone and surgery. No...reactions3comments
"Totally Faking it. Just Wanting Attention"I've had Crohn's Disease since I was 15. Well.... I wasn't fully diagnosed until just recently. Back then I tried to get my mom to get me looked at and...reactions6comments
Did I walk around smelling all day?"I would just want to crawl in a hole and die if I walked around smelling like sh*t. Even worse if others noticed it." My God I would be so...reactions2comments
Building a chatbot to help me cope... A what??Hi all, this story starts about 10 years ago when I was diagnosed with Crohn's Disease. At first, I just tried to ignore it. But as you all know, that...reactions2comments
Crohn's Disease SymptomI would like to know if when you have Crohn's, do u have an inflammatory feeling in your abdomen ? I can’t get to see a specialist until February 2019...reactions4comments
Have had Crohn's for over 60 yearsHave had Crohns for over 60 years. Resection done 25 years ago. Anal area very sensitive so that I avoid any invasive procedure. Afraid I could be developing a partial...reactions5comments
This is my story...Hi - just joined so thought I would share a semi brief of my life with Crohn’s. Diagnosed 13 years ago after about 18mths - 2 yrs of symptoms. Too...reactions2comments
"We think she's having a heart attack."Flash back 3 and a half years. I just gave birth to the most non alien looking, beautiful baby girl. My life had been a hot mess before I became...reactions3comments
A Long, Long journey.....I am writing this in the hope that it will help younger people. You see, I am 73 years old and I have had ulcerative colitis since I was 16...reactions2comments
"BUT YOU LOOK SO HAPPY AND HEALTHY”. SHUT UP.Having an “invisible illness” is annoying. I mean, it wouldn’t be so invisible if I walked around in a crop top, but whatever. I've literally been at death's door time...reactions5comments
This helped me with my fistulasI had a doctor that learned under Dr. Crohn himself. His name was Dr. Ross & he called it "the Ross bikini". He said to put a piece of cotton...reactions2comments
My Journey with Bowel Diseases and MoreI have had 3 Endoscopes and 2 Colonoscopies within a 5 year period. In that time frame, I was diagnosed with silent Gerd, Gastroparesis, Irritable Bowel Disease, Barrett's Esophagus, and...reactions1comment