Long RoadI went years un-diagnosed, many doctors telling me it was in my head. I was persistent enough to keep asking questions and find a doctor that would listen. I was...Reactions0reactionsComments6 comments
Crohn's kicks my buttI have had Crohn's all of my life, but was not diagnosed officially until two years ago. Before I was diagnosed, I couldn’t even walk without stomach pains forcing me...Reactions0reactionsComments5 comments
My story, waiting for a diagnosis.It all started 10 weeks ago. It was 4 days before Christmas and I started to suffer with diarrhea. It was very watery diarrhea and I would have this several...Reactions0reactionsComments4 comments
It’s a marathonI was diagnosed with UC four and a half years ago after a month of symptoms. For three years, my UC was moderate to severe, never in remission, but never...Reactions0reactionsComments1 comments
Long time CrohnieI started demonstrating symptoms at age 8 and was finally diagnosed at age 10 with Crohn's Disease- that was in 1979. So now here I am... 40 years later.... 4...Reactions0reactionsComments1 comments
A glimmer of hope...I was diagnosed with Ulcerative Colitis when I was 28 years old. It took about 2 years to get into remission but once I did, I was fairly stable. Unfortunately...Reactions0reactionsComments2 comments
Years to Diagnosis, Significant Impact to Mental HealthLike so many others, it’s been a long journey and I know I've still got further to travel. I’ve had pain since my early teens, went through a number of...Reactions0reactionsComments2 comments
Never Surrender to Battle Fatigue: Reflections from a UC WarriorIt’s Christmas time. A crooning cowboy wails “We Wish You a Merry Christmas” over the store intercom. I’m rubbing elbows with a throng of other holiday bargain shoppers in a...Reactions0reactionsComments8 comments
50 Years of Crohn'sWhen I was first diagnosed, it was called ileitis. I was 17 years old and had no clue how serious this was. There were two treatments, Prednisone and surgery. No...Reactions0reactionsComments3 comments
"Totally Faking it. Just Wanting Attention"I've had Crohn's Disease since I was 15. Well.... I wasn't fully diagnosed until just recently. Back then I tried to get my mom to get me looked at and...Reactions0reactionsComments6 comments
Did I walk around smelling all day?"I would just want to crawl in a hole and die if I walked around smelling like sh*t. Even worse if others noticed it." My God I would be so...Reactions0reactionsComments2 comments
Building a chatbot to help me cope... A what??Hi all, this story starts about 10 years ago when I was diagnosed with Crohn's Disease. At first, I just tried to ignore it. But as you all know, that...Reactions0reactionsComments2 comments
Crohn's Disease SymptomI would like to know if when you have Crohn's, do u have an inflammatory feeling in your abdomen ? I can’t get to see a specialist until February 2019...Reactions0reactionsComments4 comments
Have had Crohn's for over 60 yearsHave had Crohns for over 60 years. Resection done 25 years ago. Anal area very sensitive so that I avoid any invasive procedure. Afraid I could be developing a partial...Reactions0reactionsComments5 comments
This is my story...Hi - just joined so thought I would share a semi brief of my life with Crohn’s. Diagnosed 13 years ago after about 18mths - 2 yrs of symptoms. Too...Reactions0reactionsComments2 comments
"We think she's having a heart attack."Flash back 3 and a half years. I just gave birth to the most non alien looking, beautiful baby girl. My life had been a hot mess before I became...Reactions0reactionsComments3 comments
A Long, Long journey.....I am writing this in the hope that it will help younger people. You see, I am 73 years old and I have had ulcerative colitis since I was 16...Reactions0reactionsComments2 comments
"BUT YOU LOOK SO HAPPY AND HEALTHY”. SHUT UP.Having an “invisible illness” is annoying. I mean, it wouldn’t be so invisible if I walked around in a crop top, but whatever. I've literally been at death's door time...Reactions0reactionsComments5 comments
This helped me with my fistulasI had a doctor that learned under Dr. Crohn himself. His name was Dr. Ross & he called it "the Ross bikini". He said to put a piece of cotton...Reactions0reactionsComments2 comments
My Journey with Bowel Diseases and MoreI have had 3 Endoscopes and 2 Colonoscopies within a 5 year period. In that time frame, I was diagnosed with silent Gerd, Gastroparesis, Irritable Bowel Disease, Barrett's Esophagus, and...Reactions0reactionsComments1 comments