IBD and the Dehydration StruggleHaving Crohn’s disease for over 14 years has taught me that I am fighting an uphill battle. Because I go to the bathroom over 12 times a day, I get...Reactions0reactionsComments4 comments
Falling in Love, Even with UCI met Z in 2018 over a dating app where I hadn’t mentioned my ulcerative colitis on my profile. I liked him instantly and we met for a drink the...Reactions0reactionsComments3 comments
The Fear of "Passing on" My Crohn's DiseaseFive percent. That's the statistical prediction of passing on my Crohn's disease to my son, according to Crohn's and Colitis UK. It doesn't sound like a huge number. For example...Reactions0reactionsComments0 comments
Celery Juice: I Always Come Back to YouIn 2018, I tried the celery juice craze that was going rampant. It was made viral by "The Medical Medium." He has his own books and is a health-guru type...Reactions0reactionsComments8 comments
My Experience Being Gluten-Free With Crohn's DiseaseToday I thought I would talk about diet and my experience specifically of going gluten-free with Crohn's disease. There are lots of people who have gone gluten-free but can it...Reactions0reactionsComments0 comments
When Remission Still Doesn't Feel Quite RightI would love it if remission meant I felt back to my normal self. The reality is that losing my colon has meant that my normal would always be a...Reactions0reactionsComments0 comments
What Does a Crohn's Flare-Up Feel Like?Living with Crohn's disease inevitably involves flares. These are times when inflammation increases and symptoms worsen. It is uncomfortable, painful, and draining. To better understand Crohn’s flares, we recently asked...Reactions0reactionsComments2 comments
When IV Insertions Go WrongLet me state the obvious: getting an IV is not fun. I have had probably hundreds of IVs inserted into my body since being diagnosed with Crohn's in 2009 and...Reactions0reactionsComments0 comments
The Ugly FistulaSome things in life can’t be explained. The hole that took up my stomach is one of them. I always thought I had a great-looking stomach. I was thin, had...Reactions0reactionsComments0 comments
The Joys of the Stool TestOne slightly vexing aspect of IBD is the stool test. For the uninitiated, this involves defecating in a pan before scooping out your excrement in little lab vials. I remember one...Reactions0reactionsComments2 comments
The Stigma of UC: Breaking the SilenceI have a secret... No one can outwardly see my struggle. From all appearances, I look normal. More importantly, I look healthy. But I know differently. I'm not like everyone...Reactions0reactionsComments29 comments
The Gut-Brain Axis and IBDI've talked on here before about how IBD can impact your mental health and why we need to do more to support patients with it. But new research has emerged...Reactions0reactionsComments0 comments
My Blood Clot, Thanks to Ulcerative ColitisIn 2021, I started to flare worse than any flare I’d had previous to this. My body was not responding to my mesalamine at all and a strong course of...Reactions0reactionsComments15 comments
Gastroparesis and IBD – An Unlucky ComboSince getting my PICC line and coming off total parenteral nutrition (TPN) in June, my body has been declining rapidly. I’ve chosen to try and keep things private, but it’s...Reactions0reactionsComments1 comments
Dealing With Incontinence and IBDAccidents. Incontinence. Call it what you will. To be in your 20s and experiencing fecal incontinence is soul-destroying. I’m not saying it’s any less soul-destroying later or earlier in life...Reactions0reactionsComments4 comments
Over 3 Decades of Crohn’s Pain… and Finally Pain-FreeOver 30 years ago, if you told me that one day my Crohn's and I would be finally pain-free, I would have probably thought it a dream. Well, I guess...Reactions0reactionsComments3 comments
Can Biologics Change Your Periods?Today I wanted to share a personal post about my experience with a changed menstrual cycle since I started Humira (also called adalimumab). After asking in Facebook groups and doing...Reactions0reactionsComments7 comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of...Reactions0reactionsComments0 comments
The Bill You Didn't Ask ForAs someone who grew up in a working-class home, I’ve always been highly conscious of money and spending. As a graduate student, my attention to money has continued to be...Reactions0reactionsComments0 comments
Gut Massage for Intestinal PainIt’s holiday vacation time. I’m sitting in a restaurant enjoying an ocean view and finishing a scrumptious seafood meal with my husband when the pain hits. The low rumble, gurgle...Reactions0reactionsComments5 comments