What to Expect: Iron Infusions...Iron deficiency anemia is a symptom I've experienced with Crohn’s disease. Lack of iron is actually quite common in healthy people, so when you add a Crohn’s diagnosis it isn’t... By thedancingcrohnie2 min readBookmark for laterReactions 0 reactions Comments6 comments
Kale Pesto Pasta...If you follow my recipes, you know I am a pasta gal. I cannot get enough of the classic spaghetti and meatballs, but I love mixing it up and trying... By Julie Marie PalumboBookmark for laterReactions 0 reactions Comments0 comments
Ostomy in the summer...Here we go... temps are rising unseasonably warmer than expected by 20 degrees in Wisconsin this week. A reminder to those of us that have an ostomy of never-ending skin...Reactions 0 reactions Comments1 repliesTips & AdviceSymptomsSurgery
Making the Shift to Biologics...In the early days of my diagnosis, I was devastated that I might be on medication for the rest of my life. I was in college and very few of... By Eshani Agrawal4 min readBookmark for laterReactions 0 reactions Comments4 comments
Do I keep advocating for myself as I am struggling in expressing the severity of how unwell I am ...Hello, I would really appreciate any guidance and advice as I am so lost. I was first referred on urgent suspected cancer pathway for a slightly raised FIT of 27...Reactions 0 reactions Comments5 repliesDiagnosisSymptomsTests
Finding Joy Despite IBD Challenges...It's very difficult to process the life we lead as inflammatory bowel disease (IBD) patients. Some days are good, some days are spent never leaving our bed, and other days... By Julie Marie Palumbo3 min readBookmark for laterReactions 0 reactions Comments0 comments
How To Support Someone With IBD...Supportive family and friends are essential for those of us living with inflammatory bowel disease (IBD). It’s not uncommon to feel isolated after diagnosis. You’re overwhelmed by all of the... By Sahara Fleetwood-Beresford4 min readBookmark for laterReactions 0 reactions Comments0 comments
IBD and Cancer...I am exhausted and scared. I recently came home from a month in hospital because of frequent and painful rectal bleeding. An endoscopy found severe inflammation (my ulcerative colitis) and... By Togfather1 min readBookmark for laterReactions 0 reactions Comments7 comments
My Surgical Journey With Crohn's...Surgery is hard. With my Crohn’s I have lost track with the number of times I have had to have some sort of surgery. Whether that be major, life-threatening or secondary... By Vern Laine4 min readBookmark for laterReactions 0 reactions Comments0 comments
Crohn's why ...Just been diagnosed with Crohn's and it being so hard Hard because no one around me just understand Tiring because how do I have to explain to people why my...Reactions 0 reactions Comments15 repliesFlare-UpsLiving with Crohn's Disease
For men definitely testosterone is huge over 90 %...Medication...Reactions 0 reactions Comments2 repliesTreatmentFlare-Ups
How can I ease off bloating and constipation ...I feel so fed up with constant bloating and irregular bowels how can I ease this without keeping taking different meds...Reactions 0 reactions Comments6 replies
How long does it take for a UC flare up to last?...Hello, I have had bloody diarrhoea for 5 weeks now. I was referred for urgent appointment to a gastroenterologist but have not heard back on appointment date. I was told...Reactions 0 reactions Comments3 repliesLiving with Ulcerative Colitis
When IBD Symptoms Don't Match Lab Results...Isn’t it frustrating when you feel great but your lab results say otherwise? In fact, despite how great you feel, according to your labs you are doing poorly medically. It’s... By thedancingcrohnie2 min readBookmark for laterReactions 0 reactions Comments0 comments
IBD/IBS and lack of benefit from Ozempic (semaglutide)...My doctor was really surprised that the highest dose of Ozempic, a type 2 diabetes med and the latest weight loss fad, didn't help with my blood sugar or weight...Reactions 0 reactions Comments1 repliesAwarenessResearch & Clinical TrialsDepression
Hi, I'm new here......Hi, I am new here. This is all so new to me I have been battling with symptoms since October 2023, starting with nausea and vomiting every single day, whether...Reactions 0 reactions Comments2 repliesCopingNewly DiagnosedSleep
Anyone taking those injection diet drugs to lose weight ...I have IBS and ischemic colitis and I am curious if anyone is taking those injection diet drugs and if yes which one are you taking? I am extremely overweight...Reactions 0 reactions Comments2 replies
how do you explain this...my 8 year old daughter was just diagnosed with Crohn. in January her calprotectin level was 653, iron level low, CRP elevated, she had done endo and colonoscopy. Confirmed chronic...Reactions 0 reactions Comments3 replies
Diagnosis...Hi all, Hoping someone can help. I went to the GP back in November. My main symptom was loosing blood while opening my bowels. I've had urgent bowel movements and...Reactions 0 reactions Comments3 replies
Crohn’s Arthritis ...Hello - I’ve had Crohn’s since 2007. Just learned something new about Crohn’s I didn’t know existed-wow! Has any one developed Crohn’s Arthritis. How is it being managed? Thank You!...Reactions 0 reactions Comments19 repliesDiagnosisAwarenessCoping