A Letter To My Long Gone ColonYou're gone. It hurts. Well mentally. It hurts mentally because you were actually the cause of my physical pain. There are days I wish I was normal. I wish you were normal...Reactions0reactionsComments1 comments
Getting appy: The apps I use to manage life with Crohn'sAm I the only one who's a bit of a phone addict? Perhaps it's the fact that so much of our support for the illness can be accessed on our...Reactions0reactionsComments1 comments
Stares at a PICC LineI got my PICC line about 2 months ago after several hospital stays during the month of April. Due to the only very small veins in my hands and feet...Reactions0reactionsComments2 comments
How to Pack for an Important Trip with Crohn'sIn my last post, I talked all about how to plan a destination wedding with IBD. I realized that offering suggestions on packing for an 8-day trip was a longer conversation...Reactions0reactionsComments3 comments
It's Not About Me AnymoreI admit I have been an extremely selfish person over my lifetime. I’m very giving, but I can also be extremely selfish at times. I realize I have a chronic...Reactions0reactionsComments1 comments
Getting a Disabled Parking Permit and Getting Over StigmaI wasn't able to find a parking space within reasonable proximity to the front of the store. By the time we hiked from the parking space to the store, I...Reactions0reactionsComments3 comments
MRI in IBDOften when your Gastroenterologist orders imaging, CT scans may be the first recommended course for assessment of IBD, but according to the National Institute of Health, this is because of...Reactions0reactionsComments3 comments
Moving In With Someone When You Have IBDWhen you live with a chronic illness like inflammatory bowel disease, so many things come up over the course of your life that you probably never would have imagined would...Reactions0reactionsComments2 comments
3 Things You Need To Stop Doing ImmediatelyAs people living with chronic conditions, we tend to live with a lot more stressors than everyone else. We have the stress of managing homes, raising kids, doing chores on...Reactions0reactionsComments2 comments
The HolidaysEvery Fall, the “High Holidays” in Judaism is upon us. Since I practice this religion, it is a time spent in synagogue, eating with family and following the traditions of...Reactions0reactionsComments2 comments
When Loss is so RealThe IBD Community has suffered so much loss lately. So many young warriors have lost their battles against this disease. Horrifying isn’t it?! When I talk about or explain what...Reactions0reactionsComments3 comments
Securing ADA Accommodations at Large EventsBefore I began experiencing symptoms of Crohn’s disease, I really enjoyed going to large gatherings such as concerts, performances, conventions, and sporting events. As someone who has wide musical interests...Reactions0reactionsComments2 comments
TransitionsWhen I was 16 years old, I decided I wanted to be a filmmaker more than I wanted to be an actress. But having grown up in the entertainment industry...Reactions0reactionsComments1 comments
Sharing Medication Experiences With OthersOne of the benefits of sharing our personal experiences with others is that it allows someone who is going through a difficult time to know that they aren’t alone. In...Reactions0reactionsComments2 comments
504 ContinuedI recently wrote about how I was having trouble getting an accommodation plan for me at work. For those who are not familiar with a 504 plan, this is an...Reactions0reactionsComments0 comments
Patient vs. Caregiver 2Read Part 1 here. Being a patient is almost easy compared to what I've witnessed as a caregiver. It's hard. But honestly, I'd rather suffer than watch someone I love...Reactions0reactionsComments2 comments
"Still Tired": Living With Crohn's FatigueI feel like "still tired" is sometimes the anthem of my life. When my Crohn's disease is active, my fatigue can be debilitating. Sometimes I'm forced to stop answering phone...Reactions0reactionsComments29 comments
Disability Advisors & Access to AssistanceIt’s fall. That means back to school. And for many of our readers, that means off to college or university! But they can also be full of anxiety, nerves and...Reactions0reactionsComments1 comments
IBD Stole My Job, House, Benefits, and Financial SecurityWhat I’m about to tell you is a crisis of conscience that many of us with chronic illnesses mid-career will experience at least one time during our careers, if not...Reactions0reactionsComments0 comments
Having an F- It MentalityLike many people, I have always been someone who cared what other people thought. I do think being diagnosed with inflammatory bowel disease (IBD) at the age of 13 has...Reactions0reactionsComments2 comments