42 year IBD veteran but still frustrated...Kenalog injections, oral steroids, re-siting the stoma, methotrexate, Cellcept, and currently modified cyclosporine which makes me incredibly fatigued,... By bobbing561 min readBookmark for laterReactions 0 reactions Comments4 comments
My journey...Then my oral medications stopped working so I was put on Remicade and I have been on it for 9 years now.... By jacklynete1 min readBookmark for laterReactions 0 reactions Comments1 comments
My Daughter Has Crohn’s...She’s had two surgeries 2006 and 2015... and I understand this is the norm... I want to learn more so I joined this site.... By jean1 min readBookmark for laterReactions 0 reactions Comments2 comments
The Amazing Powers of Words...prednisone and started to gain weight, another coworker told me, “Never lose that much weight again, you looked terrible.” 3) In an attempt to restore some normalcy... By glycolysis3 min readBookmark for laterReactions 0 reactions Comments4 comments
Crohn's and Me...Finally one young doctor managed to look in my eyes and gave me prednisone drops and oral prednisone.... By galinka1 min readBookmark for laterReactions 0 reactions Comments1 comments
HELP! Has anyone had a similar experience?...But after 3 days of stopping oral ingestion and being in parenteral nutrition, I had a colonoscopy that showed the same as last year, but the stenosis... By katemarkle931 min readBookmark for laterReactions 0 reactions Comments2 comments
Oral Crohn’s - scarring...I was just wondering if anyone knew of any surgeries available in the UK for scarring as a result of mouth ulcers due to Crohn’s? I used to get really...Reactions 0 reactions Comments2 replies
Why I Wanted to Die...I still have to watch what I eat and I still have abnormal fatigue, but I really want to live and feel the Lord wants to me to live... By grandmagail4 min readBookmark for laterReactions 0 reactions Comments5 comments
30 Years of Living with IBD & Still Goin'...I had been prescribed 11 different oral medications within less than 2 years - nothing worked. I had lost over 45 lbs. Lost my full-time job.... By jules04074 min readBookmark for laterReactions 0 reactions Comments3 comments
I Avoided Two Stomach Surgeries...When traveling through, he somehow backtracked to where he could see the wire for the camera, meaning there was a fistula, an abnormal passage, in my intestine... By ltremellen10 min readBookmark for laterReactions 0 reactions Comments4 comments
Newly diagnosed, trying to stay afloat with a big hole in my boat.....scared of surgery and having a potential new source of inflammation where it's resected (if I do have to do it in the future) and can't stand my new By abrattell4 min readBookmark for laterReactions 0 reactions Comments5 comments
Struggling on oral steroids...I’m still on the oral steroids being reported down slowly, I’m now on 20mg a day and have to do that for 7 days then I go down 5mg...Reactions 0 reactions Comments4 repliesCopingDiet & NutritionDepression
Kale Pesto Pasta...The kale is a nice substitution for basil (what you normally find in a pesto) and since it is ground up in a food processor or blender, it is... By Julie Marie PalumboBookmark for laterReactions 0 reactions Comments0 comments
Recommendations for Eating Out (i.e. chain restaurants)...Please include any instructions you normally give the server....Reactions 0 reactions Comments1 repliesDiet & NutritionNewly Diagnosed
Looking for low residue diet recipes...Told to eat normally so I've since eaten a very healthy diet. Have had a colostomy since. I have had several extremely painful blockages....Reactions 0 reactions Comments5 replies
Swollen durning flareup?...I wake up in the morning to my face and arms being abnormal puffy and it doesn’t go away. Thanks...Reactions 0 reactions Comments2 replies
not sure if IBD/very new and confused...As far as I know Colitis doesn't normally affect only the terminal ileum. Thanks :)...Reactions 0 reactions Comments1 repliesNewly DiagnosedTips & AdviceDiagnosis
J - POUCH for Ulcerative Colitis...Eating "normally"? Any complications? I have loads of questions....Reactions 0 reactions Comments7 replies
Has anyone suffered with terrible side effects to either IV or oral iron?...Has anyone suffered with terrible side effects to either IV or oral iron? Have a question? Ask it here!...Reactions 0 reactions Comments5 replies
Could it be IBD?...(don't take NSAID's, don't drink, eat fairly normally) TIA :)...Reactions 0 reactions Comments2 repliesAwarenessLesser Known SymptomsSymptoms